Therapies & Equipment
A Word of Comfort
It goes without saying that the journey to recovery will bring tough days, but don’t give up! Everything you do for your child will help them recover, but be patient - it might take time but you will see them progress. Give yourself credit for helping them and getting through this. The 'highs' are wonderful. When facing the 'lows', your love, support and encouragement will help your child to slowly recover.
Our personal experience showed us that, on a day-to-day basis, Danny’s biggest fight was with the effects of PFS (rather than with his tumour which was being treated with Chemotherapy and Radiotherapy). It is our son's fight to recover which inspired us to start this charity and help children suffering from Posterior Fossa Syndrome.
Our Support Group
The Danny Green Fund also runs a Facebook Support Group for parents of children who are suffering from Posterior Fossa Syndrome which is also known as Cerebal Mutism. The group is a mix of parents and caregivers from all over the world where members can seek advice based on other peoples' experience of the condition, it is a safe environment for parents to share views, experiences, concerns, vent and to offer support to others in a similar situation.
When requesting to join, a private message will be sent to the applicant to ensure that this group is the right group to support them.